Kwon Oh-joong's "One Korean" rare disease is unfortunate, and "There is no cure..."I wish I came out before I died"

Jul 17, 2025

Kwon Oh-joong's 'One Korean' rare disease is unfortunate, and 'There is no cure...'I wish I came out before I died'



Actor Kwon Oh-joong said that the best goal in life is to treat his son's rare disease.

In a recent interview with the Gyeonggi Ilbo, Kwon Oh-joong revealed the recent status of his son with a rare disease and a hiatus of the past four years.

He took four to five years off from 2020. Since the end of last year, I have been working hard in the office"The coronavirus has made the family difficult. It's hard to live as a celebrity spouse. My wife is a healthy and future-oriented person, but my family has struggled with it. I stopped drinking, which I liked, and let's go all-in to my family, and now my family is very harmonious.




The son who suffers from a rare disease is currently studying as an aspiring actor. Kwon Oh-joong joined an agency where his son had sick friends who dreamed of becoming an actor while learning acting. Son has acting DNA. I like being in front of others. I also like it because I took a lot of people to the set when I was young. I posted what I tried to take on YouTube. Isn't it good for you if you do it. When I take pictures of my son, I become a scary senior or director. That's why my son doesn't like me taking pictures."

Asked about his ultimate goal in life, Kwon Oh-joong said, `My son has no cure yet. There is no cure because it is an extremely rare disease with only a few people in the world. I want a cure before I die"If you want to be an actor, I want to be an actor who can give you the idea that it's comfortable if actor Kwon Oh-joong plays until you get really old," he said.

Kwon Oh-joong's 'One Korean' rare disease is unfortunate, and 'There is no cure...'I wish I came out before I died'
Previously, Kwon Oh-joong appeared as Shin Hyun-jun's best friend on Channel A 'Best Talk Documentary Table for Four', which aired in January, and revealed his son's rare disease in detail.




On his son with a rare disease and developmental disability, Kwon Oh-joong said, "My son graduated from college in 2023. I thought high school was the last. When I was young, I was fine. It's getting progressive. No one knows what will happen. There is no data, so..." he confessed.

Kwon Oh-joong applied to various places in response to his son's desire to go to college, but he failed, and his wife applied to a school with a disability screening and passed immediately" he said.

There were also words to send his son to work after graduating from college, but Kwon Oh-joong "Even if he is physically uncomfortable, he works if he does not have an intellectual disability. Even if you're not feeling well. I can do it even if I have an intellectual problem, but my child has both. Intellectual, delay"I'm interested in painting and acting. Someone told me that there was a place that taught me acting, so I contacted him and my son began to learn acting,' he said to the actor Park Young-kyu's agency.




Meanwhile, Kwon Oh-joong confessed that his son has a rare disease development disorder, which has 15 people around the world and one person in Korea.



lyn@sportschosun.com