In the AI era, it is difficult to judge trust information due to excessive information on half of cancer patients...6 Principles for the Use of Cancer Information
Nov 30, 2025
|
The survey was conducted to analyze the cancer information search experience of patients and their guardians and use it as a basis for providing accurate cancer information. A total of 255 patients or caregivers within 2 years of cancer diagnosis participated in the survey online.
◇Cancer patients search for 'Precision'·'Cure' on the Internet immediately after diagnosis
As a result of the survey, the first cancer information searched by patients was 'cancer prognosis'(64.3%) and 'cancer treatment'(56.9%). In particular, cancer treatment information was searched in the order of 'Treatment Method and Effectiveness', 'Side Effects and Management', and 'Life Management', and the younger the age, the higher the interest in 'Treatment Method and Effect', and'Private and Alternative Therapy Information'. The main channels for obtaining information were 'Internet Portal' (62.4%) and 'Hospital Medical Staff' (56.1%), among which the patient himself responded that he mainly used 'YouTube' and the guardian 'Portal'.
67.5% of the respondents evaluated that the medical staff's explanation was sufficient and easy to understand, but 83.9% of the respondents said they searched for additional cancer information. The main reasons were 'Curious Resolution' (71.0%) and 'Case and Experience Confirmation' (67.8%). However, after searching, 43.5% requested 'medical staff counseling', but 40.4% said they did not take any special action after searching for information.
◇I look for a lot of information, but 'Difficult to judge trust'
While the demand for information is high, the main difficulties in navigating cancer information are 'difficulty in determining trust due to excessive information'(53.7%),'difficulty in understanding diagnostic situations'(40.8%), and'difficulty in distinguishing reliable channels'(38%).
In the search process, 'real cases of the same cancer experienced person', 'medical staff summary data' and 'customized information' were helpful, and the important factors for trusting and delivering cancer information in an easy-to-understand manner were 'customized step-by-step configuration information' (61.6%). When providing information, it was found that both the patient himself and the guardian preferred 'customized information' (76.5%).
Professor Kim Hong-sik of the Department of Hematologic Oncology at Chungbuk National University, who was the speaker on this day, said "As many patients conduct information search, a critical view is needed as to whether fake information or exaggerated claims were included in the search." To compensate for this, it was recommended that "it would be helpful to refer to information from official institutions such as the National Cancer Information Center and the Korean Oncology Association or to find information from oncology medical staff who are treating cancer.".
Professor Heo Seok-jae of the Department of Hematologic Oncology at Dong-A University Hospital announced the six principles of cancer information in the digital age based on the survey results.
Professor Heo Seok-jae said "There are more cases than expected that patients accept AI-informed information as it is"Information identified by search needs to be cross-verified through at least two sources" he stressed. In addition, "Even if it is a real experience case, it is necessary to recognize that the treatment that can be applied to each patient may be different, and to check the information through conversation with medical staff rather than self-conclusion" he said.
The Korean Society of Oncology, which celebrates its 20th anniversary this year, has designated the fourth Wednesday of November every year as 「Cancer Treatment Day」 since 2017, and has held various events to help a proper understanding of chemotherapy, and has operated the official YouTube channel"KSMO TV" to provide high-quality content. In particular, over the past three years, it has been announced whether appropriate information has been provided based on social media that patients encounter a lot.
Park Joon-oh, Chairman of the Korean Society of Oncology, said "The results of this cancer information search survey for cancer patients were a meaningful opportunity to look at cancer patients' information search experiences and see what difficulties they are experiencing."In the future, the Korean Society of Oncology will continue to strive to continue a healthy life by providing appropriate information and treatment to cancer patients and their caregivers."
※Recommendation of the Korean Society of Oncology '6 Principles of Using Cancer Information in the Digital Age'
1. Based on information from official agencies
2. Ensure information is 'up-to-date, reasonable, expert participation' together
3. Determine if the information is appropriate for my situation
4. 'Cross-Verify' from at least two sources
5. Beware of provocative titles, excessive certainty, and categorical messages
6. Use all digital information as an aid for communication with the medical staff
|
This article was translated by Naver AI translator.
