A special Children's Day gift for children with cancer and rare diseases
May 02, 2025
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Eleven-year-old Kim Hyun-woo is taking steps toward his dream. Hyun-woo, who has recently been diagnosed with chronic myeloid leukemia, uses treatments, and is under outpatient follow-up, is participating in a dielectric analysis project to improve diagnosis and treatment of pediatric blood cancer patients through the Lee Kun-hee project to overcome childhood cancer and rare diseases. Through this, he is contributing to the expansion of a treatment platform that will help other patients, not just his own treatment. Hyun-woo continues to grow without stopping from pain and is constantly moving toward his dream.
Like Hyun-woo, there are many children who develop their own dreams while fighting diseases.
In order to present these children with a meaningful Children's Day, the Children's Cancer and Rare Diseases Support Project Group (Director Choi Eun-hwa) held a 'We Grow' event at CJ Hall of Seoul National University Children's Hospital on May 2.
The event was carried out to deliver hope to patients with childhood cancer and rare diseases, taking over the maintenance of the late Samsung Chairman Lee Kun-hee, who hoped for healthy growth of children. At the event, the project group delivered a key slogan, #Pain is not Stop, #kidsneverstop, #WeAreGrowingThePain from Disease Is Not Stop, Children Are Great Being Still Growing and Growing. About 200 patients, families and medical staff gathered together to share each other's dreams and hopes, and cheer for a future that grows beyond pain.
Lee Eun-gyeol, an illusionist, donated the entire performance fee held on this day to Seoul National University Children's Hospital, presenting patients with a magical moment when their dreams turn into reality. I sympathize with the purpose of Lee Kun-hee's project to overcome childhood cancer and rare diseases. "Although I can't heal my sick body, I want to present a small miracle-like moment where my heart can breathe for a while." expressed his heart.
In the "Dream of Achieving Dreams" section, we introduced the dreams and wishes sent by pediatric cancer and rare disease patients and caregivers across the country, and there was a time of support and encouragement to achieve them. Kim Hae-sung (6 years old, pseudonym) was born as a premature baby for 27 weeks and was diagnosed with short bowel syndrome, a rare disease with fewer than 100 patients nationwide. Due to brain lesions and autism disorders, development was slow and walking was uncomfortable, so he recently underwent leg surgery. "I want to help my child's rehabilitation and make a fun time by practicing bicycles with the spring breeze."Haesung's mother said she was happy to achieve her wish through the project group. Haesung-gun is currently participating in the home vein nutrition support system construction project to receive treatment support and provides valuable data that will help other patients.
In addition, a brain tumor patient who wants to write a medical novel while carefully observing the hospital during hospitalization and a mother of an acute lymphoblastic leukemia patient who wants to play in the water with her child before implantation surgery (an instrument inserted into a thick vein deep in the body to safely receive anti-cancer drugs).
In addition, various side events such as a caricature zone, a magic balloon zone, and a photo zone operated by Acorn Caricature were also prepared, allowing participants to leave pleasant and precious memories.
Choi Eun-hwa, head of the Children's Cancer and Rare Diseases Support Project (Director of Seoul National University Children's Hospital), said "This event was a place to carry on the noble will of the late Chairman Lee Kun-hee, to convey dreams and hopes to patients who are exhausted from treatment, and to present precious memories" The project team will continue to do its best in cooperation with medical staff across the country to help children grow up healthy in both body and mind"
Meanwhile, Lee Kun-hee's pediatric cancer and rare disease overcoming project is a 10-year mid- to long-term project that supports treatment and research of patients with childhood cancer and rare diseases, and has been expanding medical infrastructure nationwide and strengthening cooperation with local hospitals to improve medical access for patients outside the metropolitan area. Through the project, a total of 11,822 patients were diagnosed from 2021 to 2024, and 5512 were treated. In addition, 29,379 cohort data were registered, and 207 medical institutions and 1529 medical staff collaborated to provide optimal treatment.
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This article was translated by Naver AI translator.
